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Rev. esp. pediatr. (Ed. impr.) ; 72(2): 94-98, mar.-abr. 2016.
Article in Spanish | IBECS | ID: ibc-153273

ABSTRACT

La Unidad de Fibrosis Quistica del Hospital Universitario Ramón y Cajal, centro de referencia de la Comunidad de Madrid, fue pionera en los años noventa, en la atención a los pacientes con esta patología grave, con una visión futurista, al centrarse en la atención multidisciplinar de un equipo (tanto del área pediátrica como de adultos), que acompaña al paciente desde la infancia a la edad adulta, lo que ha contribuido, de forma clave, a la mejora en la calidad y esperanza de vida de estos pacientes. A lo largo de los años, la Unidad ha ido creciendo en todos los aspectos y es, hoy, ejemplo para muchas otras patologías (AU)


The Cystic Fibrosis Unit of the University Hospital Ramón y Cajal, reference center of the Community of Madrid, was a pioneer in the 19903, in the care given to patients with this serious condition. It has had a futuristic view, on focusing on multidisciplinary care of a team (both in the pediatric and adult area), accompanying the patient from Childhood to the adult age. This has played a critical role to the improvement in the quality of life and life expectancy of these patients. Over these years, the Unit has been growing in all the aspects and is currently an example for many other conditions (AU)


Subject(s)
Humans , Male , Female , Child , Hospital Units/organization & administration , Hospital Units/standards , Hospital Units , Cystic Fibrosis/epidemiology , Cystic Fibrosis/prevention & control , Child Care/methods , Child Care/organization & administration , Child Health/history , Child Health/trends , Life Expectancy/trends , Neonatal Screening/methods , Neonatal Screening/standards , Neonatal Screening , Research/instrumentation , Research/trends
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